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The Mystery of Ehlers-Danlos Syndrome

2023-10-26
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Release : 2023-10-26
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Book Synopsis The Mystery of Ehlers-Danlos Syndrome by : Minnie H Lewis

Download or read book The Mystery of Ehlers-Danlos Syndrome written by Minnie H Lewis. This book was released on 2023-10-26. Available in PDF, EPUB and Kindle. Book excerpt: The Mystery Of Ehlers-Danlos Syndrome: A Comprehensive Guide for Patients, Caregivers, and Healthcare Professionals Ehlers-Danlos syndrome (EDS) is a collection of genetic connective tissue illnesses that predominantly affect your skin, joints, and blood vessel walls. People with EDS may experience a wide range of symptoms, including joint hypermobility, skin fragility, chronic pain, and fatigue. This comprehensive guide provides everything you need to know about EDS, from understanding the causes and diagnosis to managing symptoms and improving quality of life. The book covers: The different types of EDS and their clinical manifestations The latest research on EDS and its treatment Practical strategies for managing EDS on a day-to-day basis The emotional and psychological impact of living with EDS Resources and support networks for patients, families, and healthcare professionals Whether you are newly diagnosed with EDS or looking for ways to better manage your condition, this book is an essential resource. Learn how to navigate the healthcare system, advocate for your needs, and live a fulfilling life with EDS. Who this book is for: This book is intended for people living with hEDS and vEDS, their caregivers, and healthcare professionals. It is written in a clear and concise style, making it accessible to readers of all backgrounds. Benefits of this book: If you are living with EDS, this book will provide you with the knowledge and tools you need to manage your condition effectively. You will learn about the latest research on EDS, as well as practical strategies for coping with symptoms and improving your quality of life. If you are a caregiver of someone with EDS, this book will help you to better understand the condition and how to support your loved one. You will also learn about resources and support networks that are available to help you and your family. If you are a healthcare professional, this book will provide you with a comprehensive overview of EDS, its clinical manifestations, and the latest treatment options. You will also learn about ways to improve the lives of your patients with EDS. Grab your copy today and start living your best life with EDS!

The Ehlers-Danlos Syndrome

1970 Medical
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Author :
Release : 1970
Genre : Medical
Kind : eBook
Book Rating : /5 ( reviews)

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Book Synopsis The Ehlers-Danlos Syndrome by : Peter Beighton

Download or read book The Ehlers-Danlos Syndrome written by Peter Beighton. This book was released on 1970. Available in PDF, EPUB and Kindle. Book excerpt: Ehlers-Danlos Syndrom.

Our Stories of Strength

2016-10-20 Connective tissues
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Release : 2016-10-20
Genre : Connective tissues
Kind : eBook
Book Rating : 620/5 ( reviews)

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Book Synopsis Our Stories of Strength by : Kendra Neilsen Myles

Download or read book Our Stories of Strength written by Kendra Neilsen Myles. This book was released on 2016-10-20. Available in PDF, EPUB and Kindle. Book excerpt: This listing is for the 7x10 full-color version of the paperback book. An inspirational collection of stories, filled with devastation, heartbreak, triumph, and strength as written by those affected by different types of Ehlers-Danlos syndrome. EDS is a group of heritable connective tissue disorders that can cause a wide variety of symptoms throughout different body systems; each unique in presentation to the individual. The variety of symptoms and presentations proves challenging to the medical community in diagnosing and treating patients; many of whom are misdiagnosed and suffer as a result. EDS has been commonly viewed as just Benign Joint Hypermobility Syndrome (BJHS/JHS) or Hypermobility Syndrome (HMS). Based upon recent research, the prevalence of EDS exceeds current estimates. Kendra Neilsen Myles founded Sisters Media, LLC with core values of giving back and providing an outlet to those willing to share their stories through submissions in the Our Stories of Strength anthology series. Sisters Media, LLC recognizes that it is through opening doors to needed conversations and sharing stories of strength, determination, and perseverance that we are able to facilitate positive changes to the way we live and help shape perceptions of those around us, as well as in the medical community. We are #Stronger2Gether."

Ehlers Danlos Syndrome

2024-06-07 Health & Fitness
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Release : 2024-06-07
Genre : Health & Fitness
Kind : eBook
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Book Synopsis Ehlers Danlos Syndrome by : Tammy R Brewster

Download or read book Ehlers Danlos Syndrome written by Tammy R Brewster. This book was released on 2024-06-07. Available in PDF, EPUB and Kindle. Book excerpt: Tired of Feeling Dismissed and Misunderstood? If you or a loved one suffers from Ehlers-Danlos syndrome (EDS), you know the frustration of endless doctor visits, vague diagnoses, and treatments that don't seem to work. You're not alone. Millions of people worldwide are living with this complex and often misunderstood condition, desperately seeking answers and relief. Unlock the Secrets of Ehlers-Danlos Syndrome Ehlers-Danlos Syndrome: Understanding EDS Types and Subtypes, Causes, Prevention, and Treatment Options is your comprehensive guide to unravelling the mysteries of EDS and taking control of your health. This book is not just a collection of medical jargon; it's a lifeline, a roadmap to understanding your body, advocating for your needs, and finding the path to a better quality of life. Inside, you'll discover: Clear and concise explanations of the different types and subtypes of EDS, their symptoms, and how they impact your daily life. The latest research on the genetic and environmental factors that contribute to EDS, as well as potential preventative measures. A comprehensive overview of treatment options, from pain management to lifestyle modifications. Empowering tools to help you advocate for your needs, communicate effectively with healthcare providers, and navigate the complexities of living with a chronic condition. This is NOT your average EDS book: No confusing jargon: We explain complex medical concepts in simple, easy-to-understand language. No false promises: We offer realistic explanations and practical advice, not miracle cures. No one-size-fits-all approach: We recognize the diversity of EDS and offer personalised strategies to meet your individual needs. We included the solutions to frequently asked questions about EDS. Imagine a life where... You understand your body and the unique challenges of EDS. You have the tools and knowledge to advocate for your needs and access appropriate care. You feel empowered, informed, and hopeful about your future with EDS. Don't let EDS control your life any longer. Order your copy of Ehlers-Danlos Syndrome Today! Your health and well-being are worth it.

Molecular Genetics and Pathogenesis of Ehlers-Danlos Syndrome and Related Connective Tissue Disorders

2020
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Release : 2020
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Kind : eBook
Book Rating : 230/5 ( reviews)

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Book Synopsis Molecular Genetics and Pathogenesis of Ehlers-Danlos Syndrome and Related Connective Tissue Disorders by : Marina Colombi

Download or read book Molecular Genetics and Pathogenesis of Ehlers-Danlos Syndrome and Related Connective Tissue Disorders written by Marina Colombi. This book was released on 2020. Available in PDF, EPUB and Kindle. Book excerpt: Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders (HCTDs) characterized by a variable degree of skin hyperextensibility, joint hypermobility and tissue fragility. The current EDS classification distinguishes 13 subtypes and 19 different causal genes mainly involved in collagen and extracellular matrix synthesis and maintenance. EDS need to be differentiated from other HCTDs with a variable clinical overlap, including Marfan syndrome and related disorders, some types of skeletal dysplasia and cutis laxa. The clinical recognition of EDS is not always straightforward, and, for a definite diagnosis, molecular testing can be of great assistance, especially in patients with an uncertain phenotype. Currently, the major challenging task in EDS is to unravel the molecular basis of the hypermobile EDS that is the most frequent form, and for which the diagnosis is only clinical in the absence of any definite laboratory test. This EDS subtype, as well as other EDS-reminiscent phenotypes, are currently investigated worldwide to unravel the primary genetic defect and related pathomechanisms. The research articles, case report, and reviews published in the Special Issue entitled “Molecular Genetics and Pathogenesis of Ehlers-Danlos Syndrome and Related Connective Tissue Disorders” focus on different clinical, genetic and molecular aspects of several EDS subtypes and some related disorders, offering novel findings and future research and nosological perspectives.

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