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The Governance of Genetic Information

2009-09-03 Law
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Release : 2009-09-03
Genre : Law
Kind : eBook
Book Rating : 644/5 ( reviews)

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Book Synopsis The Governance of Genetic Information by : Heather Widdows

Download or read book The Governance of Genetic Information written by Heather Widdows. This book was released on 2009-09-03. Available in PDF, EPUB and Kindle. Book excerpt: This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring. Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of commodification, commercialisation and ownership, the concepts of property and intellectual property and concerns about individual and communal identity. Thus the decisions that are made in the next few years about appropriate models of genetic governance will have knock-on effects for other areas of governance. In short the final answer to 'Who Decides?' in the context of genetic governance will fundamentally shape the ethical constructs of individuals and their networks and relationships in the public sphere.

Human Genome Editing

2017-08-13 Medical
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Release : 2017-08-13
Genre : Medical
Kind : eBook
Book Rating : 880/5 ( reviews)

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Book Synopsis Human Genome Editing by : National Academies of Sciences, Engineering, and Medicine

Download or read book Human Genome Editing written by National Academies of Sciences, Engineering, and Medicine. This book was released on 2017-08-13. Available in PDF, EPUB and Kindle. Book excerpt: Genome editing is a powerful new tool for making precise alterations to an organism's genetic material. Recent scientific advances have made genome editing more efficient, precise, and flexible than ever before. These advances have spurred an explosion of interest from around the globe in the possible ways in which genome editing can improve human health. The speed at which these technologies are being developed and applied has led many policymakers and stakeholders to express concern about whether appropriate systems are in place to govern these technologies and how and when the public should be engaged in these decisions. Human Genome Editing considers important questions about the human application of genome editing including: balancing potential benefits with unintended risks, governing the use of genome editing, incorporating societal values into clinical applications and policy decisions, and respecting the inevitable differences across nations and cultures that will shape how and whether to use these new technologies. This report proposes criteria for heritable germline editing, provides conclusions on the crucial need for public education and engagement, and presents 7 general principles for the governance of human genome editing.

Assessing Genetic Risks

1994-01-01 Medical
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Release : 1994-01-01
Genre : Medical
Kind : eBook
Book Rating : 986/5 ( reviews)

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Book Synopsis Assessing Genetic Risks by : Institute of Medicine

Download or read book Assessing Genetic Risks written by Institute of Medicine. This book was released on 1994-01-01. Available in PDF, EPUB and Kindle. Book excerpt: Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.

Privacy Issues in Biomedical and Clinical Research

1998-11-10 Medical
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Release : 1998-11-10
Genre : Medical
Kind : eBook
Book Rating : 515/5 ( reviews)

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Book Synopsis Privacy Issues in Biomedical and Clinical Research by : National Research Council

Download or read book Privacy Issues in Biomedical and Clinical Research written by National Research Council. This book was released on 1998-11-10. Available in PDF, EPUB and Kindle. Book excerpt: After discussions with the National Cancer Institute and the Department of Energy the Board on Biology of the National Research Council agreed to run a workshop under the auspices of its Forum on Biotechnology entitled "Privacy Issues in Biomedical and Clinical Research" on November 1, 1997. The organizers want to stress the forum was not intended to cover the full gauntlet of issues concerning Genomics and the Privacy of Medical Records. The emphasis of this forum was to look at pending legislation in Congress (Fall, 1997) and consider, if enacted as written, how this would affect genetic research. The broad language of this legislation written to protect the individual could inadvertently restrict research intended to help these same individuals. Scientific progress requires the sharing of information for the validation of results and the dissemination of gained knowledge to be effective. Other issues which were touched upon in this forum but not fully explored include; the trust of individuals involved in genetic studies in the manner their genetic information could be used, the practice of the generalized "linking" of particular ethnic groups with specific genetic traits, and the potential for positive and negative impact on the quality of life by having knowledge of one's genetic potential. These and other issues which have come upon us in the age of genomics require separate, focused efforts to explore their potential effect on society.

Genetic Governance

2005 Bioethics
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Release : 2005
Genre : Bioethics
Kind : eBook
Book Rating : 066/5 ( reviews)

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Book Synopsis Genetic Governance by : Robin Bunton

Download or read book Genetic Governance written by Robin Bunton. This book was released on 2005. Available in PDF, EPUB and Kindle. Book excerpt: Contributors look at how the 'new' genetics, healthcare and arising health policy can or should be governed and regulated, rather than focusing on individualistic ethical issues, this text takes a broader, international public health approach.

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