Share

Principles and Practice in Biobank Governance

2016-04-15 Social Science
Download Principles and Practice in Biobank Governance PDF Online Free

Author :
Release : 2016-04-15
Genre : Social Science
Kind : eBook
Book Rating : 889/5 ( reviews)

GET EBOOK


Book Synopsis Principles and Practice in Biobank Governance by : Mark Stranger

Download or read book Principles and Practice in Biobank Governance written by Mark Stranger. This book was released on 2016-04-15. Available in PDF, EPUB and Kindle. Book excerpt: Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles and policies are debated, and new models and theoretical frameworks are presented through this intellectually stimulating, informative volume. This truly international volume offers new insights from a range of disciplinary perspectives and will be essential reading for policy makers and scholars across a range of social sciences, including sociology, bioethics, law and social policy.

Principles and Practice in Biobank Governance

2009 Biobanks
Download Principles and Practice in Biobank Governance PDF Online Free

Author :
Release : 2009
Genre : Biobanks
Kind : eBook
Book Rating : 158/5 ( reviews)

GET EBOOK


Book Synopsis Principles and Practice in Biobank Governance by : Mark Stranger

Download or read book Principles and Practice in Biobank Governance written by Mark Stranger. This book was released on 2009. Available in PDF, EPUB and Kindle. Book excerpt:

Governing Biobanks

2012-02-03 Law
Download Governing Biobanks PDF Online Free

Author :
Release : 2012-02-03
Genre : Law
Kind : eBook
Book Rating : 835/5 ( reviews)

GET EBOOK


Book Synopsis Governing Biobanks by : Jane Kaye

Download or read book Governing Biobanks written by Jane Kaye. This book was released on 2012-02-03. Available in PDF, EPUB and Kindle. Book excerpt: Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as the potential of individually-tailored drug treatments based on genetic predisposition. However, they also raise considerable challenges for existing legal frameworks and research governance structures. This book critically examines the current governance structures in place for biobanks in England and Wales. It shows that the technologies, techniques and practices involved in biobanking do not always conform neatly to existing legal principles and frameworks that apply to other areas of medical research. Using a socio-legal approach, including interview data gathered from the scientific community, this book provides unique insights and makes recommendations about appropriate governance mechanisms for biobanking in the future. It also explores the issues around the secondary use of information, such as consent and how to protect privacy, when biobanks are accessed by a number of different third parties. These issues have relevance both within England and Wales and to a wide international audience, as well as for other areas where large datasets are used.

Biobanks

2008-04-28 Business & Economics
Download Biobanks PDF Online Free

Author :
Release : 2008-04-28
Genre : Business & Economics
Kind : eBook
Book Rating : 277/5 ( reviews)

GET EBOOK


Book Synopsis Biobanks by : Herbert Gottweis

Download or read book Biobanks written by Herbert Gottweis. This book was released on 2008-04-28. Available in PDF, EPUB and Kindle. Book excerpt: This groundbreaking book makes it clear that biobanks are a phenomenon that cannot be disconnected from considerations of power, politics and the reshaping of current practices in governance.

Ethics, Law and Governance of Biobanking

2015-01-22 Medical
Download Ethics, Law and Governance of Biobanking PDF Online Free

Author :
Release : 2015-01-22
Genre : Medical
Kind : eBook
Book Rating : 738/5 ( reviews)

GET EBOOK


Book Synopsis Ethics, Law and Governance of Biobanking by : Deborah Mascalzoni

Download or read book Ethics, Law and Governance of Biobanking written by Deborah Mascalzoni. This book was released on 2015-01-22. Available in PDF, EPUB and Kindle. Book excerpt: Biobank research and genomic information are changing the way we look at health and medicine. Genomics challenges our values and has always been controversial and difficult to regulate. In the future lies the promise of tailored medical treatments and pharmacogenomics but the borders between medical research and clinical practice are becoming blurred. We see sequencing platforms for research that can have diagnostic value for patients. Clinical applications and research have been kept separate, but the blurring lines challenges existing regulations and ethical frameworks. Then how do we regulate it? This book contains an overview of the existing regulatory landscape for biobank research in the Western world and some critical chapters to show how regulations and ethical frameworks are developed and work. How should international sharing work? How design an ethical informed consent? An underlying critique: the regulatory systems are becoming increasingly complex and opaque. The international community is building systems that should respond to that. According to the authors in fact, it is time to turn the ship around. Biobank researchers have a moral responsibility to look at and assess their work in relation to the bigger picture: the shared norms and values of current society. Research ethics shouldn’t only be a matter of bioethicists writing guidelines that professionals have to follow. Ethics should be practiced through discourse and regulatory frameworks need to be part of that public discourse. Ethics review should be then not merely application of bureaucracy and a burden for researchers but an arena where researchers discuss their projects, receive advice and practice their ethics skills.

You may also like...