1# Library to Find Best eBook for Read
Author : Anne Rugari
Release : 2018-10-30
Genre : Young Adult Nonfiction
Kind : eBook
Book Rating : 716/5 ( reviews)
Book Synopsis Just Like Me!: A Book about a Girl with a Rare Disease by : Anne Rugari
Download or read book Just Like Me!: A Book about a Girl with a Rare Disease written by Anne Rugari. This book was released on 2018-10-30. Available in PDF, EPUB and Kindle. Book excerpt:
Author : Taylor Kane
Release : 2019-09-02
Genre : Biography & Autobiography
Kind : eBook
Book Rating : 810/5 ( reviews)
Book Synopsis Rare Like Us by : Taylor Kane
Download or read book Rare Like Us written by Taylor Kane. This book was released on 2019-09-02. Available in PDF, EPUB and Kindle. Book excerpt: Taylor Kane was a daddy's girl from the moment she was born, smiling and cooing whenever her father was around and refusing to sleep until he held her in his arms. But shortly after she turned three years old, the unthinkable happened. Her father was diagnosed with a rare, genetic disease for which there was no cure. It wasn't long before he began to experience a number of bizarre and frightening symptoms, and young Taylor watched helplessly as the disease ravaged his body and mind, transforming him into a shell of the father she once knew: a man unable to walk, talk, swallow or understand what was going on around him. A man who no longer recognized her.Fast forward five years. Her beloved father now gone, nine-year-old Taylor is dealt another devastating blow when she learns that she is a genetic carrier of the disease that took her father's life. Not only will her future children have a fifty percent chance of inheriting the disease, she, too, faces the risk of developing symptoms of her own in the future. In Rare Like Us, Taylor, now a twenty-one-year-old college student, shares the invaluable lessons she learned growing up in a family plagued by a genetic disease so rare that most doctors have never seen it, much less heard of it. She recounts with raw honesty how she managed to conquer her childhood demons and come to terms with her grief and loss; how she transformed her pain into passion and purpose; and how she continues to strive to honor her father's legacy by living her life in a way that would make him proud. This compelling memoir of a young woman's resilience and determination will captivate and inspire not only those who have experienced the isolation and despair that comes with having a rare disease, but anyone who has struggled to find the silver lining in heartbreak or tragedy, or who is searching for hope in the face of an uncertain future.
Author : Hayley Okines
Release : 2011-10-27
Genre : Health & Fitness
Kind : eBook
Book Rating : 569/5 ( reviews)
Book Synopsis Old Before My Time by : Hayley Okines
Download or read book Old Before My Time written by Hayley Okines. This book was released on 2011-10-27. Available in PDF, EPUB and Kindle. Book excerpt: Hayley Okines is like no other 13-year-old schoolgirl. In Old Before My Time, Hayley and her mum Kerry reflect on her unusual life. Share Hayley’s excitement as she travels the world meeting her pop heroes Kylie, Girls Aloud and Justin Bieber and her sadness as she loses her best friend to the disease at the age of 11. Now as she passes the age of 13 – the average life expectancy for a child with progeria – Hayley talks frankly about her hopes for the future and her pioneering drug trials in America which could unlock the secrets of ageing for everyone...
Author : Heather Lanier
Release : 2021-07-06
Genre : Family & Relationships
Kind : eBook
Book Rating : 655/5 ( reviews)
Book Synopsis Raising a Rare Girl by : Heather Lanier
Download or read book Raising a Rare Girl written by Heather Lanier. This book was released on 2021-07-06. Available in PDF, EPUB and Kindle. Book excerpt: “A remarkable book . . . I found myself thinking that all expectant and new parents should read it.” —Michelle Slater A New York Times Book Review Editors' Choice In Raising a Rare Girl, Lanier explores how to defy the tyranny of normal and embrace parenthood as a spiritual practice that breaks us open in the best of ways. Like many women of her generation, when Heather Lanier was expecting her first child she did everything by the book in the hope that she could create a SuperBaby, a supremely healthy human destined for a high-achieving future. But her daughter Fiona challenged all of Lanier’s preconceptions. Born with an ultra-rare syndrome known as Wolf-Hirschhorn, Fiona received a daunting prognosis: she would experience significant developmental delays and might not reach her second birthday. The diagnosis obliterated Lanier’s perfectionist tendencies, along with her most closely held beliefs about certainty, vulnerability, God, and love. With tiny bits of mozzarella cheese, a walker rolled to library story time, a talking iPad app, and a whole lot of pop and reggae, mother and daughter spend their days doing whatever it takes to give Fiona nourishment, movement, and language. Loving Fiona opens Lanier up to new understandings of what it means to be human, what it takes to be a mother, and above all, the aching joy and wonder that come from embracing the unique life of her rare girl.
Author : Tiffany Schmidt
Release : 2015-05-19
Genre : Juvenile Fiction
Kind : eBook
Book Rating : 109/5 ( reviews)
Book Synopsis Hold Me Like a Breath by : Tiffany Schmidt
Download or read book Hold Me Like a Breath written by Tiffany Schmidt. This book was released on 2015-05-19. Available in PDF, EPUB and Kindle. Book excerpt: In Penelope Landlow's world, almost anything can be bought or sold. She's the daughter of one of the three crime families controlling the black market for organ transplants. Because of an autoimmune disorder that causes her to bruise easily, Penny is considered too "delicate" to handle the family business, or even to step foot outside their estate. All Penelope has ever wanted is independence--until she's suddenly thrust into the dangerous world all alone, forced to stay one step ahead of her family's enemies. As she struggles to survive the power plays of rival crime families, she learns dreams come with casualties, betrayal hurts worse than bruises, and there's nothing she won't risk for the people she loves. Perfect for fans of Holly Black and Kimberly Derting, this first book in the stunning new Once Upon a Crime Family series from acclaimed author Tiffany Schmidt will leave readers breathless.
