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Helping Your Nf1 Child

2017-01-22
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Release : 2017-01-22
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Kind : eBook
Book Rating : 542/5 ( reviews)

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Book Synopsis Helping Your Nf1 Child by : Christopher Maloney

Download or read book Helping Your Nf1 Child written by Christopher Maloney. This book was released on 2017-01-22. Available in PDF, EPUB and Kindle. Book excerpt: For the parents of NF1 children or newly diagnosed adults, Dr. Maloney covers the genetics of NF1 simply. He shows why the disease varies so widely in its symptoms and gives cutting edge research possibilities for its treatment.

A Parent's Guide to Learning Disabilities Associated with Neurofibromatosis Type 1

2014-10-21
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Release : 2014-10-21
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Kind : eBook
Book Rating : 382/5 ( reviews)

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Book Synopsis A Parent's Guide to Learning Disabilities Associated with Neurofibromatosis Type 1 by : B. C. Neurofibromatosis Foundation

Download or read book A Parent's Guide to Learning Disabilities Associated with Neurofibromatosis Type 1 written by B. C. Neurofibromatosis Foundation. This book was released on 2014-10-21. Available in PDF, EPUB and Kindle. Book excerpt: This book is uniquely designed as a resource for parents of children with both NF1 and learning disabilities. Whether your child is just entering kindergarten, or is in their high school years, parents will find relevant material and strategies in this guide to help their student excel with their education. Inside you will find information on: Explaining NF1 to Teachers, Social Challenges Common to NF1, Attention Deficit Disorders and NF1, Psychological Implication of Learning Disabilities , plus much more. Order a copy for your child's classroom teacher too!

Neurofibromatosis

2011-01-01 Medical
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Release : 2011-01-01
Genre : Medical
Kind : eBook
Book Rating : 133/5 ( reviews)

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Book Synopsis Neurofibromatosis by : Bruce R. Korf

Download or read book Neurofibromatosis written by Bruce R. Korf. This book was released on 2011-01-01. Available in PDF, EPUB and Kindle. Book excerpt: Here is the state-of-the-art on recognizing, managing and living with neurofibromatosis (NF) for patients, families, and health care professionals. From new genetic and diagnostic advances, to associated cardiovascular and endocrine abnormalities, to the significant psychosocial impact of NF, the book is packed with clear, practical guidance for understanding and living with this disability.Special features: A complete diagnostic guide to help you recognize NF-related symptoms--with a timeline for when they might appear New treatment options for NF, including pain control Coverage of the newly discovered form of NF, schwannomatosis Personal perspectives from NF patients and their families Glossary that defines medical terminology With the great diagnostic and treatment advances achieved in the last decade, and research proceeding rapidly, the future for patients with NF has never been brighter. For all individuals living with the challenges of this disability, the book brings you to the forefront of medical knowledge. Make sure it is within close reach for fast and easy reference.

Thriving with Neurofibromatosis

2010-12-02 Neurofibromatosis
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Release : 2010-12-02
Genre : Neurofibromatosis
Kind : eBook
Book Rating : 693/5 ( reviews)

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Book Synopsis Thriving with Neurofibromatosis by : Kristi Hopkins

Download or read book Thriving with Neurofibromatosis written by Kristi Hopkins. This book was released on 2010-12-02. Available in PDF, EPUB and Kindle. Book excerpt: 1 in 3000 people are born with Neurofibromatosis. It affects all of us in different ways. For some, Neurofibromatosis is as clear as the tumors on their face. For others, it hides beneath the surface, creating tumors that destroy hearing, vision, and more. Many of us are misdiagnosed, misunderstood, and often simply missed by a world of medicine that doesn't have a full grasp on all teh effects of NF. Stereotyped, ignored, or shunned by a world who thinks we either have the Elephant Man's disease, common migraines, or a few too many moles and birthmarks. In a society that values beauty so highly, NF'ers often choose to hide from others, and end up hiding from themselves. In 2007, Kristi chose to stop hiding, and start Thriving, as NF became a bigger part of my life than ever before, taking a firm grip on the health of three of my six children. Most people with NF, or any of a thousand other genetic disorders, focus on surviving from day to day. My kids deserve more than just to survive. And so do YOU. Thriving with Neurofibromatosis. We ALL have a story, this is mine.

The NF Parent Guidebook

2017
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Release : 2017
Genre :
Kind : eBook
Book Rating : /5 ( reviews)

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Book Synopsis The NF Parent Guidebook by : Maria Acosta

Download or read book The NF Parent Guidebook written by Maria Acosta. This book was released on 2017. Available in PDF, EPUB and Kindle. Book excerpt:

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