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Extraordinary! A Book for Children with Rare Diseases (Mandarin)

2022-03-03 Family & Relationships
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Release : 2022-03-03
Genre : Family & Relationships
Kind : eBook
Book Rating : 446/5 ( reviews)

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Book Synopsis Extraordinary! A Book for Children with Rare Diseases (Mandarin) by : Evren And Kara Ayik

Download or read book Extraordinary! A Book for Children with Rare Diseases (Mandarin) written by Evren And Kara Ayik. This book was released on 2022-03-03. Available in PDF, EPUB and Kindle. Book excerpt: (Mandarin) What makes a child with a rare disease extraordinary? Explore the answer to this question while sharing a conversation with Evren about what he has learned while growing up with his own rare disease. Written collaboratively by mother and son, this book opens up a child-friendly discussion about identity, inclusion, and self-concept in light of the challenges and silver linings of living with a rare disease. The gentle lessons draw on the co-author's first-hand experience of growing up with an ultra-rare disease and offer young readers a framework for understanding personal identity and how their rare diseases can help shape it in positive ways. Family members and caregivers are invited to share in this conversation and to customize the reading according to each young reader's developmental needs. Accompanied by sensitive yet realistic illustrations created by award-winning artist and children's book illustrator Ian Dale, the heartfelt messages introduced in Extraordinary! are intended to uplift and encourage any children living with rare diseases to live their very best lives.

Extraordinary! A Book for Children with Rare Diseases

2021-03-26 HEALTH & FITNESS
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Release : 2021-03-26
Genre : HEALTH & FITNESS
Kind : eBook
Book Rating : 484/5 ( reviews)

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Book Synopsis Extraordinary! A Book for Children with Rare Diseases by : Evren Ayik

Download or read book Extraordinary! A Book for Children with Rare Diseases written by Evren Ayik. This book was released on 2021-03-26. Available in PDF, EPUB and Kindle. Book excerpt: What makes a child with a rare disease extraordinary? Explore the answer to this question while sharing an illustrated conversation with Evren Ayik about what he has learned while growing up with his own rare disease. Written collaboratively by mother and son, Extraordinary! A Book for Children with Rare Diseases opens up a child-friendly discussion about identity, inclusion, and self-concept in light of the challenges and silver linings of living with a rare disease. Family members and caregivers are invited to share in this conversation and to customize the reading according to each young reader's developmental needs. The gentle lessons draw on the co-author's firsthand experience of growing up with an ultra-rare genetic disease and offer young readers a framework for understanding personal identity and how their rare diseases can help shape it in positive ways. Extraordinary! is intended to celebrate the diversity and beauty inherent in all children around the world. Accompanied by sensitive yet realistic illustrations created by award-winning artist and children's book illustrator Ian Dale, the heartfelt messages introduced in Extraordinary! are intended to uplift and encourage any children living with rare diseases to live their very best lives.

Orphan

2015 Medical
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Release : 2015
Genre : Medical
Kind : eBook
Book Rating : 373/5 ( reviews)

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Book Synopsis Orphan by : Philip Reilly

Download or read book Orphan written by Philip Reilly. This book was released on 2015. Available in PDF, EPUB and Kindle. Book excerpt: "This book is about the struggle to save the lives of children who, because of a roll of the genetic dice, are born with any one of more than several thousand rare genetic disorders. It recounts the now century long effort of small groups of physicians and scientists to take on some of these genetic diseases. In many cases just a few physician-scie

An Ordinary Day

2017-10-24 Photography
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Release : 2017-10-24
Genre : Photography
Kind : eBook
Book Rating : 613/5 ( reviews)

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Book Synopsis An Ordinary Day by : Karen Haberberg

Download or read book An Ordinary Day written by Karen Haberberg. This book was released on 2017-10-24. Available in PDF, EPUB and Kindle. Book excerpt: An Ordinary Day is a documentation of the personal lives of courageous kids who have rare genetic conditions and their families who love and support them at all cost. 1 in 10 Americans are living with a rare genetic condition. The conditions that rule the lives of these families are often overlooked by society, but for millions of people it is a matter of foremost priority. This book sheds an important and compassionate light on these existences. Life often presents challenges that seem insurmountable. Children are not exempt from this, but often through their innocence and will we can find inspiration and hope. An Ordinary Day displays unforgettable photographs set against intimate conversations, documenting the lives of 27 children living with rare genetic conditions. Readers will fall in love with these children, share in their struggles and victories, and celebrate the life-affirming spirit captured in every image. The book invites us to connect with kids like Ethan, a nonverbal 7-year-old who learns to sign to communicate his needs, 5-year-old Madison who has taken her first steps after years of crawling, and Jonathan, a 9-year-old boy who finally learns to eat with a spoon after many failed trials. Tasks often taken for granted, are profound triumphs for children afflicted with rare genetic conditions. The every day moments captured in An Ordinary Day inspire awareness and empathy, while highlighting the commonalities between families with rare genetic conditions, and more deeply between us all. Poignant and revelatory, An Ordinary Day illuminates what it means to be a family.

Old Before My Time

2011-10-27 Health & Fitness
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Release : 2011-10-27
Genre : Health & Fitness
Kind : eBook
Book Rating : 569/5 ( reviews)

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Book Synopsis Old Before My Time by : Hayley Okines

Download or read book Old Before My Time written by Hayley Okines. This book was released on 2011-10-27. Available in PDF, EPUB and Kindle. Book excerpt: Hayley Okines is like no other 13-year-old schoolgirl. In Old Before My Time, Hayley and her mum Kerry reflect on her unusual life. Share Hayley’s excitement as she travels the world meeting her pop heroes Kylie, Girls Aloud and Justin Bieber and her sadness as she loses her best friend to the disease at the age of 11. Now as she passes the age of 13 – the average life expectancy for a child with progeria – Hayley talks frankly about her hopes for the future and her pioneering drug trials in America which could unlock the secrets of ageing for everyone...

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