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The Ethics of Biomedical Big Data

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Release : 2016-08-03
Genre : Philosophy
Kind : eBook
Book Rating : 251/5 ( reviews)

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Book Synopsis The Ethics of Biomedical Big Data by : Brent Daniel Mittelstadt

Download or read book The Ethics of Biomedical Big Data written by Brent Daniel Mittelstadt. This book was released on 2016-08-03. Available in PDF, EPUB and Kindle. Book excerpt: This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. ‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can be used to address these problems to achieve the appropriate balance between the social goods of biomedical Big Data research and the safety and privacy of individuals. Seventeen original contributions analyse the ethical, social and related policy implications of the analysis and curation of biomedical Big Data, written by leading experts in the areas of biomedical research, medical and technology ethics, privacy, governance and data protection. The book advances our understanding of the ethical conundrums posed by biomedical Big Data, and shows how practitioners and policy-makers can address these issues going forward.

Ethics and Governance of Biomedical Research

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Release : 2016-05-09
Genre : Philosophy
Kind : eBook
Book Rating : 311/5 ( reviews)

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Book Synopsis Ethics and Governance of Biomedical Research by : Daniel Strech

Download or read book Ethics and Governance of Biomedical Research written by Daniel Strech. This book was released on 2016-05-09. Available in PDF, EPUB and Kindle. Book excerpt: In this book, scholars with different disciplinary and national backgrounds argue for possible answers and analyse case studies on current issues of governance in biomedical research. These issues comprise among others the research-care distinction, risk evaluation in early human trials, handling of incidental findings, nocebo effects, cluster randomized trials, publication bias, or consent in biobank research. This book demonstrates how new technologies and research possibilities multiply or intensify already known governance challenges, leaving room for ethical analysis and complex moral choices. Clinical researchers, research ethics committee members and research ethicists have all to deal with such challenges on a daily basis. While general reflection on core concepts of research ethics is seldom pointless, those confronted with hard moral choices do need more practical and contextualized reflection on the said issues. This book particularly provides such contextualized reflections and aims to inform all those who study, conduct, regulate, fund, or participate in biomedical research.

An Ethical Framework for Global Governance for Health Research

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Release : 2019-11-13
Genre : Philosophy
Kind : eBook
Book Rating : 325/5 ( reviews)

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Book Synopsis An Ethical Framework for Global Governance for Health Research by : Kiarash Aramesh

Download or read book An Ethical Framework for Global Governance for Health Research written by Kiarash Aramesh. This book was released on 2019-11-13. Available in PDF, EPUB and Kindle. Book excerpt: This book provides a comprehensive description and ethical analysis of one of the most challenging areas: international health research. Furthermore, it provides a vivid portrait of the current situation of global governance for health research and its main challenges and suggests a comprehensive and universal ethical framework based on the existing theories and frameworks. This work is a must-read for all the students, scholars, professionals, activists, and policy-makers who are involved or interested in the global health research enterprise and its governance and ethics.

Ethical and Regulatory Aspects of Clinical Research

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Author :
Release : 2003
Genre : Medical
Kind : eBook
Book Rating : /5 ( reviews)

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Book Synopsis Ethical and Regulatory Aspects of Clinical Research by : Ezekiel J. Emanuel

Download or read book Ethical and Regulatory Aspects of Clinical Research written by Ezekiel J. Emanuel. This book was released on 2003. Available in PDF, EPUB and Kindle. Book excerpt: Professionals in need of such training and bioethicists will be interested.

Human Genome Editing

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Release : 2017-08-13
Genre : Medical
Kind : eBook
Book Rating : 880/5 ( reviews)

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Book Synopsis Human Genome Editing by : National Academies of Sciences, Engineering, and Medicine

Download or read book Human Genome Editing written by National Academies of Sciences, Engineering, and Medicine. This book was released on 2017-08-13. Available in PDF, EPUB and Kindle. Book excerpt: Genome editing is a powerful new tool for making precise alterations to an organism's genetic material. Recent scientific advances have made genome editing more efficient, precise, and flexible than ever before. These advances have spurred an explosion of interest from around the globe in the possible ways in which genome editing can improve human health. The speed at which these technologies are being developed and applied has led many policymakers and stakeholders to express concern about whether appropriate systems are in place to govern these technologies and how and when the public should be engaged in these decisions. Human Genome Editing considers important questions about the human application of genome editing including: balancing potential benefits with unintended risks, governing the use of genome editing, incorporating societal values into clinical applications and policy decisions, and respecting the inevitable differences across nations and cultures that will shape how and whether to use these new technologies. This report proposes criteria for heritable germline editing, provides conclusions on the crucial need for public education and engagement, and presents 7 general principles for the governance of human genome editing.

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