Data Disclosure

2023-04-26 Law

Author : Moritz Hennemann
Release : 2023-04-26
Genre : Law
Kind : eBook
Book Rating : 600/5 ( reviews)

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Book Synopsis Data Disclosure by : Moritz Hennemann

Download or read book Data Disclosure written by Moritz Hennemann. This book was released on 2023-04-26. Available in PDF, EPUB and Kindle. Book excerpt: Data has become a key factor for the competitiveness of private and state actors alike. Personal data in particular fuels manifold corresponding data ecosystems - in many cases based on the disclosure decision of an individual. This volume presents the proceedings of the bidt "Vectors of Data Disclosure" conference held in Munich 2022. The contributions give comparative insights into the data disclosure process - combining perspectives of law, cultural studies, and business information systems. The authors thereby tackle the question in which way regulation and cultural settings shape (or do not shape) respective decisions in different parts of the world. The volume also includes interim results of the corresponding bidt research project - including in-depth reports covering the regulatory and cultural dimensions of data disclosure in eight different countries / regions worldwide, a business information systems model of the disclosure decision process, and empirical studies. The volume thereby lays the ground for interdisciplinary informed policy decisions and gives guidance to stakeholders.

Synthetic Datasets for Statistical Disclosure Control

2011-06-24 Social Science

Author : Jörg Drechsler
Release : 2011-06-24
Genre : Social Science
Kind : eBook
Book Rating : 26X/5 ( reviews)

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Book Synopsis Synthetic Datasets for Statistical Disclosure Control by : Jörg Drechsler

Download or read book Synthetic Datasets for Statistical Disclosure Control written by Jörg Drechsler. This book was released on 2011-06-24. Available in PDF, EPUB and Kindle. Book excerpt: The aim of this book is to give the reader a detailed introduction to the different approaches to generating multiply imputed synthetic datasets. It describes all approaches that have been developed so far, provides a brief history of synthetic datasets, and gives useful hints on how to deal with real data problems like nonresponse, skip patterns, or logical constraints. Each chapter is dedicated to one approach, first describing the general concept followed by a detailed application to a real dataset providing useful guidelines on how to implement the theory in practice. The discussed multiple imputation approaches include imputation for nonresponse, generating fully synthetic datasets, generating partially synthetic datasets, generating synthetic datasets when the original data is subject to nonresponse, and a two-stage imputation approach that helps to better address the omnipresent trade-off between analytical validity and the risk of disclosure. The book concludes with a glimpse into the future of synthetic datasets, discussing the potential benefits and possible obstacles of the approach and ways to address the concerns of data users and their understandable discomfort with using data that doesn’t consist only of the originally collected values. The book is intended for researchers and practitioners alike. It helps the researcher to find the state of the art in synthetic data summarized in one book with full reference to all relevant papers on the topic. But it is also useful for the practitioner at the statistical agency who is considering the synthetic data approach for data dissemination in the future and wants to get familiar with the topic.

Overview of the Privacy Act of 1974

2010 Government publications

Author : United States. Department of Justice. Privacy and Civil Liberties Office
Release : 2010
Genre : Government publications
Kind : eBook
Book Rating : /5 ( reviews)

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Book Synopsis Overview of the Privacy Act of 1974 by : United States. Department of Justice. Privacy and Civil Liberties Office

Download or read book Overview of the Privacy Act of 1974 written by United States. Department of Justice. Privacy and Civil Liberties Office. This book was released on 2010. Available in PDF, EPUB and Kindle. Book excerpt: The "Overview of the Privacy Act of 1974," prepared by the Department of Justice's Office of Privacy and Civil Liberties (OPCL), is a discussion of the Privacy Act's disclosure prohibition, its access and amendment provisions, and its agency recordkeeping requirements. Tracking the provisions of the Act itself, the Overview provides reference to, and legal analysis of, court decisions interpreting the Act's provisions.

Sharing Clinical Trial Data

2015-04-20 Medical

Author : Institute of Medicine
Release : 2015-04-20
Genre : Medical
Kind : eBook
Book Rating : 324/5 ( reviews)

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Book Synopsis Sharing Clinical Trial Data by : Institute of Medicine

Download or read book Sharing Clinical Trial Data written by Institute of Medicine. This book was released on 2015-04-20. Available in PDF, EPUB and Kindle. Book excerpt: Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.

Health Data in the Information Age

1994-01-01 Computers

Author : Institute of Medicine
Release : 1994-01-01
Genre : Computers
Kind : eBook
Book Rating : 954/5 ( reviews)

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Book Synopsis Health Data in the Information Age by : Institute of Medicine

Download or read book Health Data in the Information Age written by Institute of Medicine. This book was released on 1994-01-01. Available in PDF, EPUB and Kindle. Book excerpt: Regional health care databases are being established around the country with the goal of providing timely and useful information to policymakers, physicians, and patients. But their emergence is raising important and sometimes controversial questions about the collection, quality, and appropriate use of health care data. Based on experience with databases now in operation and in development, Health Data in the Information Age provides a clear set of guidelines and principles for exploiting the potential benefits of aggregated health dataâ€"without jeopardizing confidentiality. A panel of experts identifies characteristics of emerging health database organizations (HDOs). The committee explores how HDOs can maintain the quality of their data, what policies and practices they should adopt, how they can prepare for linkages with computer-based patient records, and how diverse groups from researchers to health care administrators might use aggregated data. Health Data in the Information Age offers frank analysis and guidelines that will be invaluable to anyone interested in the operation of health care databases.

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Data Disclosure

Overview of the Privacy Act of 1974

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