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Children and Youth with Complex Cerebral Palsy

2018 MEDICAL
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Release : 2018
Genre : MEDICAL
Kind : eBook
Book Rating : 996/5 ( reviews)

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Book Synopsis Children and Youth with Complex Cerebral Palsy by : Laurie J. Glader

Download or read book Children and Youth with Complex Cerebral Palsy written by Laurie J. Glader. This book was released on 2018. Available in PDF, EPUB and Kindle. Book excerpt: This is the first book to focus exclusively on the management of the many medical comorbidities encountered by children and adolescents with more complex presentations of cerebral palsy.

Children and Youth with Complex Cerebral Palsy

2019-02-26 Medical
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Release : 2019-02-26
Genre : Medical
Kind : eBook
Book Rating : 989/5 ( reviews)

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Book Synopsis Children and Youth with Complex Cerebral Palsy by : Laurie Glader

Download or read book Children and Youth with Complex Cerebral Palsy written by Laurie Glader. This book was released on 2019-02-26. Available in PDF, EPUB and Kindle. Book excerpt: Children with complex cerebral palsy (typically, but not always, GMFCS levels IV and V) require skilled management and extensive expertise which can be overwhelming or intimidating for many clinical practitioners. This book explores management of the many medical comorbidities these children encounter, including orthopedic concerns, mobility and equipment needs, cognition and sensory impairment, difficult behaviors, seizures, respiratory complications and nutritional challenges, among many others. Summary points at the end of each chapter provide at-a-glance access to key recommendations. In addition, an Appendix provides adaptable care tools to guide clinicians in evaluation, preventive care and crisis management. Importantly, the book includes contributions from parents of children with cerebral palsy and youth with cerebral palsy, providing unique and critical wisdom for family-centred care. Parents and families of children and youth with complex cerebral palsy will particularly appreciate the inclusion of chapters on adolescence, transition to adulthood, and growing up, growing well with cerebral palsy.

Family Needs of Parents of Children and Youth with Cerebral Palsy

2010-08-30
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Release : 2010-08-30
Genre :
Kind : eBook
Book Rating : 588/5 ( reviews)

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Book Synopsis Family Needs of Parents of Children and Youth with Cerebral Palsy by : Nihad A. Almasri

Download or read book Family Needs of Parents of Children and Youth with Cerebral Palsy written by Nihad A. Almasri. This book was released on 2010-08-30. Available in PDF, EPUB and Kindle. Book excerpt: It is important for professionals who provide medical, rehabilitation, educational, and community services for children and youth with cerebral palsy to provide a quality medical home, family-centered, and needs-based services to address their needs and improve child and family well-being. Knowledge regarding determinants and unique profiles of needs for families of children and youth with cerebral palsy is limited. The aims of this research were to (1) test structural equation models of determinants of three types of family needs of parents of children and youth with cerebral palsy; (2) identify and describe unique profiles of family needs; and (3) examine whether profiles of needs are differentiated based on child, family, and service characteristics. Participants were 579 parents of children and youth with cerebral palsy. Children/youth and their parents completed a modified version of the Family Needs Survey, Family Environment Scale, Coping Inventory, Children's Assessment of Participation and Enjoyment, Measure of Processes of Care, and Services questionnaire. Research assistants determined the Gross Motor Function Classification System levels of the children. The structural models explained 23% of variance in needs related to child condition, 43% of variance in needs related to community and financial resources, and 33% of variance in needs related to family functioning. The determinants of the three models included different combinations of services (accessibility, coordination, processes), family (relationships, income), and child (gross motor function, adaptive behavior, communication problems) characteristics. K-means cluster analysis indicated four unique profiles of needs: Low Needs, Needs Related to Child Health Condition, Needs Related to Community and Financial Resources, and High Needs. Profile membership was differentiated based on child gross motor function and adaptive behavior, family relationships and income, and access to and coordination of services. Families who were included in the profile of low needs commonly reported accessible, coordinated, and family-centered care. The results emphasize the importance of providing medical and family-centered services to address the unique needs of families of children and youth with cerebral palsy. Service providers are encouraged to engage families in expressing their needs, collaborate with families in identifying resources to meet needs, and guide families in navigating complex service systems to address needs.

Cerebral Palsy

2006-05-08 Health & Fitness
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Release : 2006-05-08
Genre : Health & Fitness
Kind : eBook
Book Rating : 547/5 ( reviews)

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Book Synopsis Cerebral Palsy by : Freeman Miller

Download or read book Cerebral Palsy written by Freeman Miller. This book was released on 2006-05-08. Available in PDF, EPUB and Kindle. Book excerpt: When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.

Neurodevelopmental Disabilities

2011-04-07 Medical
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Release : 2011-04-07
Genre : Medical
Kind : eBook
Book Rating : 278/5 ( reviews)

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Book Synopsis Neurodevelopmental Disabilities by : Dilip R. Patel

Download or read book Neurodevelopmental Disabilities written by Dilip R. Patel. This book was released on 2011-04-07. Available in PDF, EPUB and Kindle. Book excerpt: Increasingly more and more children with developmental disabilities survive into adulthood. Pediatricians and other clinicians are called upon to care for an increasing number of children with developmental disabilities in their practice and thus there is a need for a practical guide specifically written for paediatricians and primary care clinicians that addresses major concepts of neurodevelopmental pediatrics. In the United States, the specialty training leading to a conjoint board certification by the American Board of Pediatrics and American Board of Psychiatry and Neurology, requires a total of 6 years of training (2 years of pediatrics, 1 year of neurology, 18 months of child neurology, 18 months of neurodevelopmental disabilities). As of December 2006, in the US, there were 241 pediatricians and 55 child neurologists certified in the subspecialty of Neurodevelopmental Disabilities. Thus most of the children with developmental disabilities are seen by pediatricians and therefore it is important for these pediatricians to be well informed of common issues in the field. The 60,000 or so pediatricians in the United States (and hundreds more in other countries) are the main target audience for a practical book on neurodevelopmental pediatrics.

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